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beachalice

Travel for termination

8 posts in this topic

I encountered an interesting what-if today.

 

I have no hesitation about medical reduction of HOM, and if two doctors agree there is a condition that will affect baby's quality of life then I support termination for medical or personal reasona. The law in my state is 20 weeks gestational age max; surrounding state laws are even more restrictive.

 

So during my psych eval, the dr pointed out that some early screening can identify some issues, but many conditions are fully diagnosed/ understood until closer to 23-25 weeks GA. She asked if I would travel for termination if baby had some devastating condition not-compatible with life - maybe even something that would require a cesarean rather than vaginal birth.

 

Hmmm.

I didn't consider that.

I guess I'll have to dig deep to identity my thoughts.

 

What are your thoughts?

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A quick google search indicates less than 1% of abortions are past 24 weeks, and of those only 2% are due a fetal problem diagnosed past 20 weeks (other reasons include external pressure to not terminate or miscalculated GA or lack of maternal knowledge regarding laws). So... like 20 total cases of fetal anomalies are diagnosed past 20 weeks in the US per year? Doesn't seem like it's as likely as the dr pointed out.

 

Hmmm.

:theeye:

I need to go for a walk.

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Wow, that's interesting. I've never been asked that.

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I guess... factoring in the odds of it actually happening... if my kids spend a few days with their daddy when I deliver, it doesn't really matter the location or gestational age of delivery.

 

I'd want to be knocked out with all the good drugs though so I could completely emotionally grieve with the family rather than be overcome by the physical process.

 

The main issue is <ALWAYS> matching with someone whose core beliefs match mine regardless of what we write on paper for contractual purposes.

I mean that I totally understand I don't have a say in parenting decisions including mercy terminations, and it's easier to give all control to the parents on paper while making sure we have common beliefs versus trying to specify in writing what the definition is of medical options for qualify of life...

 

I'm rambling.

Yay for SET of PGS embryo?

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A good friend of mine who used to be really active on here (many moons ago) had to do this. Her state only allows it up to 'x' age, and by the time they had the confirmation as to baby's condition, it was already pushed to the limit. She had to fly to NY to have it done, I don't remember off the top of my head exactly how many weeks she was, but enough to have to travel for it. I drove out to take care of her the weekend she flew back and helped her out w/her kids. I felt so bad for all she had to go through, and def. NOT something that one tends to think of.

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Also (and this is more for any lurkers or newbies) it's important to remember that it 1000% doesn't matter if embryos are PGD/PGS tested normal, other than chromosomally normal. (meaning the correct # of chromosomes) PGD/PGS testing looks at a very small number of more common disorders and that's it. Testing "normal" doesn't mean that the embryo is viable/healthy or doesn't have any number of other disorders. For example, one of my children has a disorder that is hereditary. It's not necessarily life threatening, but there is greater risk for specific cancers that require early and somewhat aggressive screening. There is a 50% chance of passing it along as well. It is something that you can PGD/PGS test for, but if you didn't know about this syndrome, it's not something that you'd test for. Testing for anything additional to what is "routinely" screened for is also an additional cost and I know that varies depending on the specific testing.

 

I know a sweet IM that has transferred many, many times w/PGD/PGS tested normal embryos, and every transfer has failed. Then again, you can take some ugly looking embryos and they turn into the cutest babies ever!!!

 

DEFINITELY agree w/the SET!!!! (multiples are no joke!) As for the testing, for me, unless there was a history of failed transfers and everything else was perfect, I'd consider as a way to exclude embryos that are unquestionably abnormal, but still know that it may not work.

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There's PGD for specific conditions if the parents are known carriers, and there's PGS for duploidy (to screen for missing chromosomes and trisomy conditions).

 

If IPs are confident they could not handle Down Syndrome, for example, then thankfully there is screening available before transfer rather than waiting until week 19 to make a decision.

 

It really is amazing to think of the technology that's available for earlier and earlier detection.

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I think that the contract should be as specific as you can make it to define under what circumstances termination would be considered or not. And include that you and the IPs are entitled to a second opinion from a different doctor/specialist before proceeding with termination. Once emotions are mixed into it, it's better to have these things figured out and explicit as possible before, people can change their mind in the heat of the moment and then you'll be at the mercy of what is written and not what was said.

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